Steve drives the EveryLife Foundation's federal and state policy priorities to accelerate innovation for rare disease therapies and diagnostics. Additionally, he manages the Foundation's Community Congress and Scientific Workshop programs which brings together stakeholders from patient groups, government, and industry. Before joining EveryLife, Steve was Senior Legislative Assistant to Congressman Rodney Frelinghuysen (NJ), former Chairman of the House Appropriations Committee. He was responsible for overseeing the Chairman's health policy agenda, including the enactment of robust funding increases for the National Institutes of Health and new funding authorized by the 21st Century Cures Act to accelerate drug development at the FDA.
Director of Public Policy, EveryLife Foundation for Rare Diseases